Frequently Asked Questions


If you have a question not listed here, please contact us!

  1. Is the ALS Living Fund a 501(c)(3) organization?

  2. There are many different charitable orgaizations for ALS. Why create another one? What makes you different?

  3. What will my donation be used to fund?

  4. What programs will the organization be funding?

  5. Can I specify for what purpose my donation will be used?

  6. From which sources does the organization receive funding?

  7. Are other organizations providing funds for similar programs or services?

  8. Doesn't Medicare or Medicaid pay for these programs or services?

  9. How are donations disbursed?

  10. What geographical areas will be served?

  11. Do only people with specific illnesses qualify for assistance?

  12. Does the organization grant to individuals or other organizations?

  13. How does the organization ensure proper use of granted funds?

  14. What is the process for granting funds?

  15. What will happen to remaining funds in the event that the ALS Living Fund were to dissolve?









  1. Is the ALS Living Fund a 501(c)(3) organization?

    Yes. A Letter of Determination was received in December 2013, effective from January 2013 when the EIN was assigned.

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  2. There are many different charitable orgaizations for ALS. Why create another one? What makes you different?

    There are indeed many organizations that raise money for ALS. Almost all of them are focused on finding a cure. We want them to succeed. But if you were diagnosed with ALS today, and until a cure is found, your only choice would be to find a way to live with this devastating disease. Helping people live despite this diagnosis is our only mission. The needs of ALS patients are immediate and, to a large degree, under-served. So we are focused only on serving the needs of people who are living with ALS today. That is what makes us different.

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  3. What will my donation be used to fund?

    At this time, donations can be placed in a general fund or allocated to one of two initiatives: 1) The ALS Living Center Initiative, a home where ALS patients can get specialized care, or 2) The Care Services Initiative, which will fund respiratory services not covered by any other means.

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  4. What programs will the organization be funding?

    1) The ALS Living Center Initiative, a home where ALS patients can get specialized care, and 2) the Care Services Initiative, which will fund respiratory services not covered by any other means.

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  5. Can I specify for what purpose my donation will be used?

    Yes. Using the Donate button, you can choose a program, or specify which program on a check that you send in to 7454 Fossil Ridge Rd., Frisco, Tx, 75034.

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  6. From which sources does the organization receive funding?

    We are currently accepting private donations and seeking appropriate grantors.

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  7. Are other organizations providing funds for similar programs or services?

    Not in the North Texas area. There are two other ALS Residences in the United States: The Steve Sailing ALS Residence in Chelsea, Ma. and the Team Gleason House for Innovative Living in New Orleans. Most ALS organizations raise funds that go towards research. The ALS Living Fund is focused on those living with ALS by building a residence and serving patients in North Texas.

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  8. Doesn't Medicare or Medicaid pay for these programs or services?

    Medicare and Medicaid will be accepted for qualified care, however, services such as respiratory treatments that extend life, are not covered by Medicare or Medicaid.

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  9. How are donations disbursed?

    Grants are awarded based on availability of funds and criteria determined solely by the Board of Directors.

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  10. What geographical areas will be served?

    Our area of operations is within the United States, however, The ALS Living Center will be located in the Dallas area.

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  11. Do only people with specific illnesses qualify for assistance?

    Yes, at this time the organization is only serving the ALS community.

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  12. Does the organization grant to individuals or other organizations?

    As required by our IRS filing, grants will only be awarded to service organizations.

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  13. How does the organization ensure proper use of granted funds?

    At the time of the award, the recipient will be notified of the required method to provide proof of proper use of granted funds. Methods may include invoicing, audits, patient signed sheets, personal visits, or any other method determined at the discretion of the Board of Directors.

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  14. What is the process for granting funds?

    The final process is currently under review by the Board of Directors, however, the process begins with application submitted by the service organization describing the justification and financial need. The Board will then assess the need, the applicant's qualifications, and other criteria, and then make an award decision. The applicant will be notified by mail and presented with a contract outlining the terms of the grant.

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  15. What will happen to remaining funds in the event that the ALS Living Fund were to dissolve?

    Any remaining funds will divided between the ALS Association and the MDA.

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